Time heals all wounds. Okay- it allows for digestion. The last 3 weeks were like sitting down to Thanksgiving dinner and eating until it is so uncomfortable you have to undo your pants. Aside from forced vomiting, nothing but time can make you feel better. That is how I have dealt with the fact that I like to defeat odds and need further specialized treatment. Time.
At Mayo last week we came up with a comprehensive, integrative, and hopeful plan to target the new disease. As my Radiation Oncologist stated, “It is a big treatment Failure. We have not seen anything like it.”
Modern Medicine
Plan of action:
1. SBRT- Stereotactic Body Radiation Therapy for 10 sessions starting soon. It delivers precise, high doses of radiation to the tumor. It is equivalent of 25 sessions of IMRT (my previous radiation) in the 10 sessions of SBRT. The side effects are going to be mostly to the sternum (no more contact sports… darn) and to my skin (blistering, lesions, sunburn, spider veins, etc.).
-Our goal is to shrink the tumors to relieve my pain and keep the lymphoma settled.
2. After radiation join a clinical trail testing the effectiveness of a drug that activates the immune system to fight off the cancer. Clinical trails are never a guarantee and the process to get in is very long and tedious.
Many have questioned if removal of disease via surgery is possible? Yes, I too had a dream that they sliced me open started to scrap it out. Well turns out that my Hematologist thought about it, but since there is so much fibrosis and scar tissue intermingling with the lymphoma cells it is impossible. I really need some of those vital organs in my chest.
Holistic Medicine
The day after I returned from Mayo I went to meet with a Ayurvedic expert to gather knowledge of a more holistic approach to care. I have been very pensive lately thinking of all the possible ways I can approach a holistic health plan. I considered all the “I cure cancer diets” (the Gerson diet, macrobiotic diet, and keytogenic diet), and I just don’t think harsh changes of eliminating certain foods is the right thing to do. I am intrigued by each one and see how they could work for some. Right now I am more focused on connecting mind, spirit, and body. That is where Ayurveda comes in.
This ancient Indian health system combines all elements and can work cohesively with modern medicine. There is no all or nothing. And for now there are still lots of options for me and modern medicine. Now if it comes to a point where all efforts have been exhausted then you will find me in some remote place getting 5 coffee enemas a day.
1. To start via the recommendation from my Hematologist and Ayurvedic NP get a reverse osmosis water system installed in home.
2. Eat all organic (since I don’t buy/consume alcohol this makes buying organic a little more feasible, but it does put a damped in the pocket-book… the price is well worth it!)
3. Limit cold/raw foods to sooth the digestive system.
4. If I can digest milk, buy non homogenized milk. Have only at night with spices and warm.
5. Maintain a morning routine of drinking a glass of hot water, scrapping the tongue (apparently your tongue can tell you a lot about your health), messaging the body with coconut oil (letting it sit for 15 min), do yoga, meditate, shower, then eat and have tea.
6. Take an herbal blood cleansing and digestive cleansing regiment.
7. Overall, my vata is out of balance and do all things to get this dosha back into alignment
It is an adventure to see how the modern and holistic ways can combine into one integrative approach. There has been a lot of advancement at major medical institutions, but honestly it is all done internally. Start from within and understand your body is interconnected to everything you put into it. Garbage in = Garbage out (yeah I learned that in Economics). The body is a temple.
Dear Katie,
First, I’d like to say I am very sorry for your troubles. Like you, I am a young man who was diagnosed with cancer, and it turned my world upside down. I was diagnosed with Hodgkin’s Lymphoma only two months before I was supposed to graduate from college. While I was able to graduate, cancer prevented me from getting a job, and when I was told I had cancer beat, my student loans came due. I was granted a small forbearance/deferment on most of my loans, and became determined to make sure I found a job in order to make sure I could pay my loans back.
However, I relapsed, and had to fight Hodgkin’s all over again starting in June, the same month my loans came due. When I asked for more time, they refused to help me. I was harassed constantly with phone calls and letters demanding payment, and I got to the point where enough was enough. I reached out to a local news company for help, and they agreed to do a story and apply pressure to the banks as well. Here’s the clip from WNBC’s website:
http://www.nbcnewyork.com/video/#!/on-air/as-seen-on/Student-Loan-Payback-Dilemma-for-Cancer-Patient/185662422
I’m writing to you because I want to do more. The type of problems you and I encountered when looking for deferment simply should not happen. Cancer is difficult enough on its own; patients don’t need to be harassed by lenders for money on top of it. I happened to come across your blog when I was searching for cancer patients who had trouble with student loans, and I read your December 6 blog about your dilemma. Would you mind contacting me so we can discuss what it is I’m trying to do further? I believe you’ll have my e-mail, as it says I must use that in order to post this.
Hope to hear from you soon,
Jonathan
You are an amazing young man -
Thank you for your kind words. I sincerely appreciate them.